Heather and Jessica Tomko are two inspiring sisters who refuse to let their disability define them. Living with SMA, a condition that weakens their muscles over time, they face numerous challenges every day. However, they remain committed to living life to the fullest and raising awareness about disabilities in the process.
SMA is a genetic disorder that affects the motor neurons, which control voluntary muscle movement. The condition ranges in severity, with some individuals experiencing mild symptoms while others become paralyzed and dependent on others for care. For Heather and Jessica, SMA was diagnosed during infancy, and they have been managing the condition their entire lives.
Despite their physical limitations, Heather and Jessica strive to fully participate in society. They have both pursued higher education, with Heather earning a Bachelor's degree in Communications and Jessica obtaining a Master's degree in Social Work. Additionally, they have worked to raise awareness about disabilities and promote accessibility. Heather has written articles and given speeches about living with SMA, while Jessica has worked as a social worker for individuals with disabilities.
► Heather's blog: https://theheatherreport.com
► Jessica's Instagram: https://www.instagram.com/jessicatomko
► Article that Jessica wrote: https://triblive.com/opinion/jessica-tomko-disability-representation-in-the-entertainment-industry
► Film Pittsburgh Reel Abilities Festival: https://filmpittsburgh.org/pages/reelabilities
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CHAPTERS:
00:00 Preview
01:09 Early Life
02:01 Spinal Muscular Atrophy (SMA) Diagnosis
05:39 Relationship as Sisters and with Parents
12:30 Colleges & Careers
19:18 Heather's Work
22:12 Jessica's Work
23:52 Billboard Message
26:30 How will you two leave your marks?
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