In my darkest hour, I summoned the strength to write my tale of pain and resilience. Each word a plea for solace, weaving a emotional moment that motivated me to write this book and start a podcast about my life changing experience.
Heather and Jessica Tomko are sisters who both have a genetic, neuromuscular disease called Spinal Muscular Atrophy (SMA). SMA affects the motor neurons, which causes people with SMA to have weak muscles that atrophy over time. Heather and Jessica were both diagnosed as infants, and a life with SMA is all they have ever known. They strive to bring their full selves, disability and all, to a world that is often inaccessible and not accepting of disabilities.
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